The Multiple Limb-Deficient Child-When the Patient/Family Declines to Accept Services Offered

JAMES A. LEONARD, JR., MD*Ann Arbor, MichiganAND SYBIL J. KOHL, ACSW**Houston, Texas


A case study of a 2-year-old child with congenital skeletal deficiencies of all four limbs was presented. The efforts by the child amputee clinic team at the University of Michigan to provide the child and his family with what the amputee clinic team perceived to be appropriate rehabilitation services were also reviewed. The family agreed to initial prosthetic fitting of the child but has chosen not to proceed with active prosthetic rehabilitation or follow-up. The interaction between the family and the amputee clinic team was analyzed and discussed. The intent of the presentation was to suggest ways in which the amputee clinic team may continue to maintain contact and provide service to the family and patient in circumstances in which the family has chosen not to proceed with active prosthetic care and restoration.

*University of Michigan, Box 55, 1405 East Ann Street, Ann Arbor, MI 48202 "The Institute for Rehabilitation and Research, 1333 Moursund, Houston, TX 77030