INFO FOR PATIENTS
ACPOC would like to recognize Julie Honeycutt, PT, Barb Kaniewski, OTR, Jamee Riggio Heelan, OTR/L, Colleen Coulter-O'Berry, PT, and Joanne Shida, OTR/L who originally presented the majority of this material in a workshop at the 2005 ACPOC annual meeting. The goal of this workshop was to generate resources that would be useful for the families of children with limb differences. This list of multimedia resources was gathered and reviewed by the participants who have used them in their practice at centers specializing in limb deficiencies and amputations. If you have experience with an appropriate resource not on this list, please contact an ACPOC education committee member or workshop presenter and we will add it to our list.
MAGAZINES ▲
Active Living Magazine. Quarterly. DT Publishing, P.O. Box 2660, Niagra Falls, NY 14302. Phone: (905) 957-6016. Fax: (905) 957-6017. e-mail: . Website: www.activelivingmagazine.com.
Exceptional Parent is a monthly magazine for parents and families of children with disabilities, and the professionals who work with them. The magazine addresses the full spectrum of special needs, including medical and family issues, as well as financial issues and advocacy. Each month's issue features a special needs article, such as autism spectrum disorders, learning disabilities, managing stress and caregiver burnout. www.eparent.com
In Motion - A Publication of the National Limb Loss Information Center (part of the Amputee Coalition of America). 6 Issues per year (bimonthly). Amputee Coalition of America: 900 East Hill Avenue, Suite 285, Knoxville, TN 37915-2568. Phone: 1-888-AMP-KNOW (267-5669). Website: www.amputee-coalition.org.
Palaestra (Greek word for sport school or gymnasium). Quarterly forum of Sports, Physical Education and Recreation for those with Disabilities: P.O. Box 508, Macomb, IL 61455. Website: www.palaestra.com. Editorial phone: (309) 833-1902.
Youth In Motion - published by the Amputee Coalition of America. Three times per year. Phone: (865) 524-8772.
NEWSLETTERS ▲
Capabilities: Communicating the Science of Prosthetics and Orthotics, Northwestern University. Quarterly. Northwestern University PRI and RERP, 345 East Superior Street, Room 1441, Chicago, IL 60611. ISBN: 105-7156. Phone help line: (312) 238-6524. Website: www.medschool.northwestern.edu/depts/repoc.
CHAMP: Available through War Amps Child Amputee Program of Canada: 2827 Riverside Drive, Ottawa, ON K1V OC4. Phone: (800) 267-4023. Website: www.waramps.ca.
FAIM Connection: Families and Amputees In Motion. A non-profit organization provides a quarterly newsletter (seasonal). c/o Shriners Hospitals for Children, 2211 North Oak Park Avenue, Chicago, IL 60707-3392.
RIC Sports Report – the Official Newsletter of the Virginia Wadsworth Wirtz Sports Program. RIC's Center for Health and Fitness: 710 North Lake Shore Drive, 3rd Floor, Chicago, IL 60611. Phone: (312) 908-4292. Website: www.richealthfit.org. or RIC website: www.ric.org.
CHILDREN'S BOOKS ▲
(Especially for children with limb deficiencies or amputations)
A Friend for Life - A story and activity book for kids with cancer – Draw Me a Picture. By Susan Nessim and Barbara Wyman. 64 pages. Proceeds go to Cancervive: 6500 Wilshire Blvd., Suite 500, Los Angeles, CA 90048. � 1994. ISBN: 0-9636333-2-5.
Chester...the imperfect all-star. By Sandra Lee Peckinpah. 40 pages. Dasan Publishing, P.O. Box 300, Agoura Hills, CA 91376. �1993. ISBN: 0-9627806-1-8.
Harry and Willy and Carrothead. By Judith Caseley. 24 pages. Greenwillow Publishing. � 1991. ISBN: 0688094929.
Imagine…Amazing me! By Libbi Chilia. 28 pages. Halo Publishing International. � 2008. ISBN-10: 0979742935. www.shoutlife.com/libbichilia
My Brand New Leg. By Sharon Rae North. 40 pages. North Star Entertainment Group. � 2003. ISBN-10: 0974154407.
Oliver's High Five. By Beverly Swerdlow Brown. 32 pages. Health Press. � 1997. ISBN: 0929173260.
Puppies for Sale. By Dan Clark. 24 pages. Dalmation Press, Franklin, TN 37067. �1999. ISBN: 1-57759-262-X.
The Making of My Special Hand, Madison's Story. By Jamee Riggio Heelan. 32 pages. Peachtree Publishers, 1700 Chattahoochee Avenue, Atlanta, GA 30318-2112. � 2000. ISBN: 1-56145-186-X.
Tibby Tried It. By Sharon and Ernie Useman. 44 pages. Magination Press. � 1999. ISBN-10: 1557985588.
EXERCISE BOOKS ▲
Exercise: What It Is, What It Does. By Carola S. Trier. 56 pages. Greenwillow Books, Attention: Children's Marketing Department, 105 Madison Avenue, New York, NY 10016. � 1982. ISBN: 0-688-00951-4.
BOOKLETS ▲
A Manual for Below Knee (Trans-tibial) Amputees, 5th Edition. By Alvin L. Muilenburg and A. Benne H. Wilson, Jr. Rehab Press: P.O. Box 380, Topping, VA 23169. For further information or permission to copy, contact ACA: 1-888-AMP-KNOW. Fax: (423) 525-7917.
Amputee's Guide - Below the Knee. By Ann Alexander. 19 pages. Adult amputee oriented guide with photos. For bulk rates, write to: Medic Publishing Co., Drawer O, Issaquah, WA 98027. �1975.
Below Amputation: A Guide for Rehabilitation. By Todd Kuiken, Mark Edwards, and Nicole Miceli. 31 pages. Rehab Institute of Chicago, Resource Librarian – Learning Resource Center. Phone: (312) 238-2859. Fax: (312) 238-4451.
Children with Limb Loss: A Handbook for Families - several booklets by age and subject. Approximately 25 pages. Center for Limb Differences, Mary Free Bed Hospital and Rehab Center, 235 Wealthy Street SE, Grand Rapids, MI 49503. Phone: (616) 454-7988.
Exercises for the Lower Extremity Amputee - A program for regaining optimal function. Medic Publishing Co., P.O. Box 89, Redmond, WA 98073-0089. Phone: (425) 881-2883. Fax: (425) 867-8939. ISBN: 0-934230-46-3.
Fit Kids. By the American Physical Therapy Association. Volume 1, Issue 1. 93 pages.
Handbook for Children with Lower Limb Deficiencies and Their Families. � 2005. Shriners Hospitals for Children, 12502 North Pine Drive, Tampa, FL 33612. Phone: (813) 975-7130.
REACH - The Association for Children with Hand or Arm Deficiencies. Quarterly newsletter "Within Reach". Main office: P.O. Box 54, Helston, Cornwall TR13 8WD. Phone: (0845) 1306 225. Website: www.reach.org.uk.
Sports for the Leg Amputee. By Bernice Kegel. 72 pages. Medic Publishing Co., P.O. Box 89, Redmond, WA 98073-0089. Phone: (206) 881-2883. �1986. ISBN: 0-934230-14-5.
Type with One Hand. By Nina K. Richardson. South-Western Publishing Company. Also available through the Sammons Preston Catalog. � 1959.
On My Own Two Feet: A Parent's Guide to Help Your Baby Walk. By Lisa and Michael Callahan. This pdf ebook provides guidance, research, resources, moral support, toys and activities with photos directed at parents raising a child with a walking development delay. www.helpyourbabywalk.com
VIDEO ▲
Upper Limb Prosthetic Options for Kids: Below Elbow. Rehabilitation Institute of Chicago, Education and Training Dept., 345 East Superior Street 16th Floor, Chicago, IL 60611. � 1992.
EDUCATIONAL PROGRAMS/RESOURCES ▲
LLEAP - Limb Loss Education Awareness Program - An Outreach Program of the Amputee Coalition of America. Phone: 1-888-AMP-KNOW (267-5669). E-mail: .
National Limb Loss Information Center (NLLIC) Topic of the Month � Through the following link you will be directed to the ACA website page which lists monthly online library topics dating back to 2005. Each topic links to resource lists including books; articles from a variety of sources, video/CD ROMs, and other related websites/organizations in either HTML or PDF format. www.amputee-coalition.org/nllic_topic.html
Parent to Parent is a national non-profit organization that provides emotional and informational support to parents of children who have special needs. This is accomplished by matching parents seeking support with an experienced, trained "Supporting Parent". These veteran "supporting parents" are carefully matched in 1-1 relationships with parents who are newly referred to the program. Because the veteran parent has shared the experience of disability in the family, the veteran parent is often able to provide a unique form of support that only another parent who has 'been there" can. www.p2pusa.org
Rehabilitation Institute of Chicago - Life Center, provides a multimedia education center for families and professionals. Many resources are available. 345 East Superior Street, Chicago, IL 60611. Phone: (312) 238-LIFE (5433). Website: www.ric.org. Click on the "Online Health Resources" button.
(primarily for exercise/sports - adults and children)
Adapted Game Controllers (PDF) � A list of websites for adapted game controllers, including options for those who need to play one-handed. Compiled by Shriners Hospital, Springfield and Tampa.
Five Steps for the Introduction to Lower-Limb Running. By Robert S. Gailey, The O&P Edge, Dec 2003. Website: www.oandp.com/edge.
Kids' Stretches. Free catalog from Stretching Inc. Publications, P.O. Box 767, Palmer Lake, CO 80133. Phone: (719) 481-3928, (800) 333-1307.
Physical Fitness: A Guide for Individuals with Lower Limb Loss. By Ernest M. Burgess and Albert Rappoport. Department of Veterans Affairs Rehabilitation Research and Development Service. Dept of VA – Veterans Health Administration, Washington DC 20420. John W. Goldschmidt, Rehab Research and Dev Service, 103 South Gay Street, Baltimore, MD 21202-4051.
Suggested Talking Points for Physical Therapist About Kids and Exercise. Physical Therapy: Exercise Your Options.
Ten Exercises to Maximize the Performance of Your Prosthetic Feet. By Robert S. Gailey, In Motion, Volume 11, Issue 3, May/June 2001.
Teasing: Books for Children,
Teasing Happens: How to make friends,
Teasing Happens: Tips for Teachers,
Teasing Happens: Tips for Parents,
Teasing Happens: What to do,
Tips for Encouraging Self-Esteem in Teens with Disabilities,
Developed by Mary Free Bed Rehabilitation Hospital, Center for Limb Differences, 235 Wealthy St SE, Grand Rapids, Michigan 49503 Phone: 616 356-1902 FAX:616 356-1903
Tummy Time Tools – A developmentally based program to incorporate positioning, handling, and fun activities into the lives of young infants. By Colleen Coulter-O'Berry, Laura Hylton-Plank, Dulcey Lima and Deanna Fish. Children's Healthcare of Atlanta, 5445 Meridian Mark Road, Suite 200, Atlanta, CA 30342. Phone: (404) 785-6890.
These sites are not controlled or maintained by ACPOC. The Association is not responsible for the content of any material presented or discussed on the referenced site nor does it monitor those sites or ensure that the site addresses are accurate. Please read our Linking Policy.
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